Repurposed: How I Found a Treatment for My Daughters




Sometimes, something crosses our path that appears to mean nothing to us but we check it out anyway because our gut tells us to. That is exactly what happened when I discovered that an OTC medication could alleviate some of my children’s symptoms.


A good deal of my time is spent reading anything that has a connection to rare diseases, in particular Ehlers-Danlos Syndrome. Occasionally, an article will cross my path that stands out for reasons that aren’t clear to me. Both good fortune and some motherly instincts led me to an article that then led me to a treatment for my children.


I started both my girls on half a dose of an OTC medication. My expectations were pretty low on how I thought this compound would perform. The impact was immediate. The first day my daughter, Olivia, had the pain between her should blades disappear - a pain no doctor could explain, but I expect was a result of inflammation. Gone. And it has not come back for the year she has been on the medication.


Olivia also had amenorrhea, an absence of menstruation, for years. She experienced a normal menstrual cycle the first month she started the medication and then the second month and the third. At first, I didn’t make the connection, I thought there must be some other reason. Now, amenorrhea is one less thing I have to worry about.