News 2020-2015

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2020

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"Living with a Rare Disease" 

Justin McCarthy

March 1st, 2020

• Rte radio 1 • CSL Behring • Providence Journal • Zeal Access

2019

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"Faces of Rare Diseases" 

Patrick Mairs

January 17th, 2019

• CSL Behring • Albert Einstein College of Medicine • News 12 The Bronx • BioQuick News • NIH Director's Blog • Pink Sheet • Food & Drug Administration • abc12 • WJAR 10 • Providence Journal

2018

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"Beyond the Diagnosis" 

February 20th, 2018

• Broad Institute • The Marietta Times • WHYY • The Temple News • Mayo Clinic • The Lancet Child & Adolescent Health • Kxan • Fox7

2017

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"Rare Art" 

Ellen Welty

April 5th, 2017

• Rhode Island Monthly • Disorder: The Rare Disease Film Festival • Food & Drug Administration

2016

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"Leading the Way: Beyond the Diagnosis" 

Daryl Velez

October 11th, 2016

• Rare Genomics Institute • Broad Institute • CBS Sunday Morning

2015

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"Exhibit Takes Viewers Beyond the Diagnosis" 

David Orenstein

February 5th, 2015

• Brown Alpert Medical School • abc6 • The Brown Daily Herald • Rhode Island Medical Journal • Today • Harvard Medical School • Boston Magazine • The Boston Globe