News 2023-2015
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2023
2022
"FDA Rare Disease Day 2021"
February, 2021
2020
"Focus on Rare Disease: Putting Patients in the Driver's Seat"
February, 2020
2019
"Faces of Rare Diseases"
Patrick Mairs
January 17th, 2019
• CSL Behring • Broad Institute • Albert Einstein College of Medicine • News 12 The Bronx • BioQuick News • NIH Director's Blog • Pink Sheet • Food & Drug Administration • abc12 • WJAR 10 • Providence Journal
2018
"Beyond the Diagnosis"
February 20th, 2018
• Broad Institute • The Marietta Times • WHYY • The Temple News • Mayo Clinic • The Lancet Child & Adolescent Health • Kxan • Fox7
2017
"Beyond the Diagnosis": Art exhibit opens at the Broad Institute (2017)"
February 24th, 2017
• Broad Institute • Rhode Island Monthly • Disorder: The Rare Disease Film Festival • Food & Drug Administration
2016
"Leading the Way: Beyond the Diagnosis"
Daryl Velez
October 11th, 2016
2015
"Exhibit Takes Viewers Beyond the Diagnosis"
David Orenstein
February 5th, 2015