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2023

Broad Institute
National Institutes of Health
Frank H. Netter Md School of Medicine
The Children's Hospital of Alabama
Boston College
SCN2A Family & Professional Conference
The Rare Fair 2023
Arkansas Children's NW
Thea Foundation
Arkansas Children's Hospital

• Broad Institute (Cambridge, MA) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • The Children's Hospital of Alabama (Birmingham, AL) • Boston College (Chestnut Hill, MA) • SCN2A Family & Professional Conference (Boston, MA) • The Rare Fair (Raleigh, NC) • Arkansas Children's Northwest (Springdale, AR) • Thea Foundation (Little Rock, AR) • Arkansas Children's Hospital (Little Rock, AR)

Rare in Times Square
Rare in Times Square
Rare in Times Square
Rare in Times Square
Rare in Times Square

• Rare in Times Square (Manhattan, NY)

2022

MAGIC Clinic
Rare Disease Network of Alberta
National institutes of Health
Quinnipiac Frank H. Netter MD School of Medicine
IONIS Pharmaceuticals
Broad Institute
Food & Drug Administration
IPSEN
The Children's Hospital of Alabama
Blue Bird Bio
Spark Therapeutics
World Orphan Drug 2022
Rare Fest

• MAGIC Clinic (Calgary Alberta, Canada) • Rare Disease Network of Alberta (Alberta, Canada) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • IONIS Pharmaceuticals (Carlsbad, CA) • Broad Institute (Cambridge, MA) • Food & Drug Administration (Silver Spring, MD) • IPSEN (Cambridge, MA) • The Children's Hospital of Alabama (Birmingham, AL) • BlueBird Bio (Cambridge, MA) • Spark Therapeutics (Philadelphia, PA) • Word Orphan Drug Congress (Boston, MA) • Rare Fest (Cambridge, England)

2021

Arffully Rare I.png

• Broad Institute (Cambridge, MA) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • National Institutes of Health (Bethesda, MD) • Food & Drug Administration (Silver Spring, MD) • Cambridge Rare Disease Network (United Kingdom) • Texas Rare Alliance (Austin, TX) • My City Med - 24 Hours of Rare • MAGIC Clinic (Calgary Alberta, Canada) 

2020

Food & Drug Administration
The Children's Hospital of Alabama
H4B Boston
Broad 2020
National Institutes of Heath
Quinnipiac Frank H. Netter MD School of Medicine
Positive Exposure

• Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • H4B Boston (Boston, MA) • Broad Institute (Cambridge, MA) • National Institutes of Health (Bethesda, MD) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • Positive Exposure (NYC, NY)  • Virtual Investor and Innovator Conference

2019

Broad Institute
Quinnipiac Frank H. Netter MD School of Medicine
Ireland Rare Disease Day
National Institutes of Health
Metropolitan Hospital Center
Food & Drug Administration
The Children's Hospital of Alabama
Albert Einstein College of Medicine
Nemours Alfred I. duPont Hospital for Children
12th International SADS Foundation Conference
Hew England Hemophilia Association Fall Fest 2019
BTG Family Meetup Baltimore
Disorder: The Rare Disease Film Festival

• Broad institute (Cambridge, MA) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • Ireland Rare Disease Day (Ireland) • National Institutes of Health (Bethesda, MD) • Metropolitan Hospital Center (NYC, NY) • Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • Albert Einstein College of Medicine (Bronx, NY) • Nemours Alfred I. duPont Hospital for Children (Wilmington, DE) • 12th International SADS Foundation Conference (Atlanta, GA) • New England Hemophilia Association Fall Fest (Warwick, RI) • BTG Family Meetup Baltimore (Baltimore, MD) • Disorder: The Rare Disease Film Festival (San Francisco, CA)

2018

Mass Bio Rare Disease Day
World Symposium
The Children's Hospital of Alabama
Nemours Alfred I. duPont Hospital for Children
Food & Drug Administration
Broad Institute
Mayo Clinic at Rochester Art Center
Texas State University Department of Physical Therapy
New England Hemophilia Association Fall Fest

• Mass Bio Rare Disease Day (Cambridge, MA) • World Symposium (Boston, MA) • The Children's Hospital of Alabama (Birmingham, AL) • Nemours Alfred I. duPont Hospital for Children (Wilmington, DE) • Food & Drug Administration (Silver Spring, MD) • Broad Institute (Cambridge, MA) • Mayo Clinic at Rochester Art Center (Rochester, MN) • Texas State University (San Marcos, TX) • New England Hemophilia Association Fall Fest (Manchester, NH)

2017

National Institutes of Health
Broad Institute
Food & Drug Administration
The Children's Hospital of Alabama
Quinnipiac Frank H. Netter MD School of Medicine
Disorder: The Rare Disease Film Festival
Zucker School of Medicine at Hofstra

• National Institutes of Health (Bethesda, MD) • Broad institute (Cambridge, MA) • Food & Drug Administration (Silver Spring, MD) • The Children's Hospital of Alabama (Birmingham, AL) • Quinnipiac Frank H. Netter MD School of Medicine (North Haven, CT) • Disorder: The Rare Disease Film Festival (Cambridge, MA) • Zucker School of Medicine at Hofstra (Hempstead, NY) 

2016

National Institutes of Health
Broad Institute
Zucker School of Medicine at Hofstra

• National institutes of Health (Bethesda, MD) • Broad Institute (Cambridge, MA) • Zucker School of Medicine at Hofstra (Hempstead, NY) 

2015

Brown University Warren Alpert Medical School
Harvard University Medical School

•Warren Alpert Medical School Brown University (Providence, RI)  • Harvard University Medical School (Boston, MA) 

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