Patient Organization Alliance

Beyond the Diagnosis art exhibit began in 2015, representing 17 different rare diseases and exhibiting at Brown University Medical School. Today, we represent over 100 diseases. We are continually growing and striving to put a face to all 7,000 rare diseases.

 

The demand for this exhibit has grown 500% in just 4 years. We have visited many of the most esteemed medical schools, research institutions and hospitals in the country. We have been featured on CBS Sunday Morning and many local news stations. Articles about the exhibit include prestigious medical journals like The Lancet.

 

We are very interested in partnering with patient organizations to help continue to grow the exhibit and more effectively promote patient organizations and their work. Membership for our Patient Organization Alliance is $250 per year. Membership includes recognition of awareness day/month through social media, availability to rent Beyond the Diagnosis art exhibit for conferences and logo recognition with a link on Beyond the Diagnosis website. Alliance membership is not a requirement of exhibit representation. 

We want to welcome Alliance members and are looking forward to growing together!

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Beckett

SYNGAP1

Iris

Iris

GM-1

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Max

Krabbe Disease

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Mason & Miles

Hemophilia

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Theodora

Timothy Syndrome

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Emma

STXBP1

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Rikki

Kabuki Disease

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