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Beyond the Diagnosis and State Zebra Network have joined forces to bring Rare Journey Across America to communities across the country. Through this partnership, we are using the power of art and advocacy to increase awareness, create connection, and bring greater visibility to children and families living with rare and life-altering disease. By bringing Beyond the Diagnosis portraitrs into communities nationwide, Rare Journey Across America gives families an opportunity to be seen, shares their stories to new audiences, and reminds us that behind every diagnosis is a child, a family, and a story worth knowing.






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