Portrait Patrons

Thank you for your support!

Rikki.jpg

"We appreciate your passion and dedication to raising awareness for the rare disease community. Thank you!"

~ Troy & Rene King

Rikki 

Kabuki Syndrome

Artist: Thea McElvy

Ashlyn copy (1).jpg

~ Amy Pillersdorf and Bob Taylor

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

Tyrece_edited.jpg

"To our nephew Tyrece and all the brave children who endure illness so young."

~ Uncle Albert & Aunt Debra Hollis

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

Glenn.jpg

"This young man moves mountains even if he can’t climb them."

~ The Maughansters

Glenn

KBG Syndrome 

Artist: Robert Hurst

Allie.jpg

"Baby Girl...you are our greatest gift from God. We love you, your courage, your perseverance, your smile, and the joy you bring into our lives."

~ Anonymous 

" Wonderful portrait for a wonderful cause." 

~ J.P. 

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

Chelsea

"We love you. Love Mom and Dad."

~ Ginger & Dennis Moyles

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

Sophia.jpg

Sophia

Rett Syndrome

Artist: Vivian McNeeley

"Thank you for all your hard work and dedication for raising awareness for all our children !!"

~ The LaFort Family

Siena.jpg

~ Amy & Stephen DiMuccio

~ Bobby

Siena

Prader-Willi Syndrome

Artist: Marie Laudini

Emma_edited.jpg

"What a journey...what a lesson...this portrait speaks to a bridge in the world of rare disease. You, Sweet Emma, are such a source of light and inspiration!"

~ Mary Elizabeth Parker

Emma

STXBP1 

Artist: Lawrence Gardiner

Cora.jpg

"Cora, your life and light shine on in your family!"

~ Mary Elizabeth Parker

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

Kalen & Kyan.jpg

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

" In honor of Kyan's 7th birthday!"

~ Doreen & Tim Ward

"Beautiful art, beautiful boys, worthy cause!"

~ The Ugarcovici Family

Ryan.jpg

" Love this project to put faces to the many many mysterious mutations and diseases and diagnoses out there. No one expects to be a part of this world or gallery, but here we are."

~ The Silversteins

Ryan

ATR-X

Artist: Annette Giaco

Dustyn.jpg

~ Organic Acidemia Association

     www.oaanews.org

Dustyn

Glutaric Aciduria

Artist: Tatiana Roulin

Max S..jpg

Max S.

Noonan Syndrome

Artist: Sara Breslin

~ Anonymous 

Colin_edited.jpg

~ Cheryl Wallace Grandmother of Colin

Colin

Menkes Syndrome

Artist: Law Blank

Daine.jpg

Daine

Osteogenesis Imperfecta

Artist: Nataliya Karashchuk

"Thank you for everything you guys do!"

~ Daine's Family

Joey.jpg

"Thanks Joey for all the joy you gave our

family in your short years!"

~ Auntie Alice 

Joey

F.I.R.E.S.

Artist: Shirley deLang

Noah&Laine.jpg

" May the Beyond the Diagnosis continue to spread awareness of rare disease. In memory of Noah & Laine - always in our hearts and souls."

~ The VanHoutan Family 

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

Talynn.jpg

" Our sweet and precious Talynn. Love, Mimi and Pop Pop."

~ Kirk and Tina Nixon

Talynn

Bohring-Opitz Syndrome

Artist: Marie Jones

Abby.jpg

Abby

Craniometaphyseal Dysplasia 

Artist: Vincent Castaldi

"We love you Abby and are waiting to see you! Your grandparents, Saba and Savta."

~ Abby’s Grandparents-Harold and Judy Liebowitz

"Abby, we love you so much! When you saw your portrait, you said you looked like the Mona Lisa... but you are even more special and beautiful! Love, mom, yoje and eli"

~ Debbie (mom), Sherrin (Yoje) and Elliot (Eli)

" We love Abby so much. She has always been a joy and inspiration."

~ Sharon and Jay Friedman 

Paige

Paige

MPS VI

Artist: Jota Leal

Conner&Malia.jpg

Conner & Malia

Sandhoff Disease

Artist: Ann Bianchi

Aliyah

Aliyah

VACTERL Association

Artist: Lauren Rudolph

Malia & Callie

Malia & Callie

Undiagnosed

Artist: Law Blank 

Clara.jpg

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

Betsi.jpg

Betsi

Morquio Syndrome

Artist: Kelly Li

Remy.jpg

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

Ava H (1).jpg

Ava W.

Fabry Disease

Artist: Jota Leal

Victor_edited.jpg

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

Curren.jpg

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

Theodora.jpg

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

Zachary.jpg

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

Olive.jpg

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

Brenna.jpg

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

Luka.jpg

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

Eliza.jpg

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

Rhaiden-Hi Res.jpg

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

Ava.jpg

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

Hunter_edited.jpg

Hunter

RSS/MVA

Artist: Dan Lake

KatherineBelle.jpg

Katherine Belle

Complex 1, NUBPL

Artist: Lori Jeremiah

Beckett.jpg

Beckett

SYNGAP

Artist: Ian Mohon

Savanna.jpg

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

Carson_edited_edited.jpg

Carson 

Cystic Fibrosis

Artist: Charlie Hall

Truman.jpg

Truman

Williams Syndrome

Artist: Pam Dooley

Harper.jpg

Harper

Angelman Syndrome

Artist: Sara Breslin

Max.jpg

Max B. 

Krabbe Disease

Artist: Jennifer Polnaszek

Devon.jpg

Devon

aHUS

Artist: Tom Hughes

Khai.jpg

Khai

Cavernous Malformation

Artist: Colin Howel

Meghan

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

Caleb.jpg

Caleb

Macrocephaly Capillary Malformation 

Artist: Serena Andrews

Asia.jpg

Asia

2q23.1 Microdeletion

Artist: Zohra Amarta

Hannah.jpg

Hannah

Incontinentia Pigmenti

Artist: Susan Bennett

Guiliana.jpg

Guiliana

Apert Syndrome

Artist: Vivian McNeeley

Megan_edited.jpg

Megan

18q- Syndrome

Artist: Megan Pugh

Rob.jpg

Rob

Blue Rubber Nevus Syndrome

Artist: Susan Klas Wright

Lily.jpg

Lily

Cystinosis

Artist: Debralee Iacobucci

Eric.jpg

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

Teagan.jpg

Teagan

Schizencephaly

Artist: Jota Leal

Brian.jpg

Brian 

Ataxia-Telangiectasia

Artist: Colin Howel

Jett.jpg

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

Iris

Iris

GM-1

Artist: Zohra Amarta

Haley.jpg

Haley

Landau Kleffner Syndrome

Artist: Nancy Gaucher Thomas

Francesca.jpg

Francesca

ADCY5

Artist: Jota Leal

KylieCropped.jpg

Kylie

Pompe Disease

Artist: Sara Breslin

Caliee.jpg

Caliee 

Familial Exudative Vitreoretinopathy

Artist: Jacob Gorke

Benjamin.jpg

Benjamin

Congenital Hyperinsulinism

Artist: Nina Raskin

Miriam.jpg

Miriam

Moebius Syndrome

Artist: Lori Jeremiah

Noah.jpg

Noah

Gaucher Disease

Artist: Ian Mohon

Austin&Max_edited.jpg

Austin & Max

Duchenne Muscular Dystrophy

Artist: Dan Lake

Aidan_edited.jpg

Aidan

Ectodermal Dysplasia

Artist: Nan Kruzik

Vanessa.jpg

Vanessa

Usher Syndrome

Artist: Vivian McNeeley

Avery.jpg

Avery

Microvillus Inclusion Disease

Artist: Dimitry Gritsenko

Jaylyn.jpg

Jaylyn

Bilateral Perisylvian Polymicrogyria

Artist: Pawel Ber

Arshaan & Jahan .jpg

Arshaan & Jahan

Jansen Type Metaphyseal Chondrodysplasia

Artist: Jennifer Cahoon

Sarah (1).jpg

Sarah

Stickler Syndrome

Artist: Carol Scavotto

Lydia.jpg

Lydia

DEND Syndrome

Artist: Kathy Noble

Bly & Ty.jpg

Bly & Ty

Barth Syndrome

Artist: Piotr Wirkijowski

Luke.jpg

Luke

Undiagnosed

Artist: Ed Capeau

Sophie (1).jpg

Sophie

Wiedemann-Steiner Syndrome

Artist: Clark Ocampo

Mason.jpg

Mason

Undiagnosed

Artist: Kevin Wasden