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Portrait Patrons 2019

Thank you for your support!

Madeline_LR.jpeg

~ Deborah Cusack

Madeline is supported by: 

~ Kimberly Cusack

~ Marilyn Schmiedel

~ Karen Maloney

~ Mary Elizabeth Parker

Madeline

Unspecified Hypomyelinating Leukodystrophy

Artist: Kimberly Cusack

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~ Cure Tay-Sachs

Cora is supported by: 

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

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~ Michelle Johanssen

Mason & Miles are supported by: 

Mason & Miles

Hemophilia

Artist: Jota Leal

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~ The Jain Family

Allie is supported by: 

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

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~ Cara & Glenn O'Neill

Eliza is supported by: 

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

Iris

Iris is supported by: 

~ Christine Waggoner

Iris

GM-1

Artist: Zohra Amarta

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Ashlyn is supported by: 

~ Family & Friends

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

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Noah & Laine are supported by: 

~ The VanHoutan Family

~ Family & Friends

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

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Tatum is supported by: 

~ Family & Friends

Tatum

USP9X

Artist: Colin Howel

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Colin is supported by: 

~ Danielle Hayes

~ Family & Friends

Colin

Menkes Syndrome

Artist: Law Blank

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Glenn is supported by: 

~ The Maughansters

~ Family & Friends

Glenn

KBG Syndrome

Artist: Robert Hurst

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Olive is supported by: 

~ Brooke Strawn

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

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Chelsea is supported by: 

~ Family & Friends

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

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Kalen & Kyan are supported by: 

~ Sierra Kulas

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

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Emma C. is supported by: 

~ Family & Friends

~ Mary Elizabeth Parker

Emma C.

STXBP1

Artist: Lawrence Gardiner

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Max B. is supported by: 

~ Allison Starr Barnett

Max B.

Krabbe Disease

Artist: Jennifer Polnaszek

Paige

Paige is supported by: 

~ Belinda Whorton

Paige

MPS VI

Artist: Jota Leal

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Amber is supported by: 

~ Family & Friends

~ Jose Arellano

Amber

Giant Axonal Neuropathy

Artist: Jota Leal

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Scarlett Rose is supported by: 

~ Family & Friends

Scarlett Rose

 Pompe Disease

Artist: Lucas Kolasa

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Tyrece is supported by: 

~ Tanya Dyer

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

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Allison is supported by: 

~ Michelle Ellis

Allison

Propionic Acidemia

Artist: Thanaseth Raksuthakarn

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Dylan is supported by: 

~ Alan Finglas

Dylan

Multiple Sulfatase Deficiency

Artist: Graham Tierney

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Gabby is supported by: 

~ Family & Friends

Gabby

Neonatal Progeroid Syndrome

Artist: Jota Leal

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Betsi is supported by: 

Betsi

Morquio Syndrome

Artist: Kelly Li

Malia & Callie

Malia & Callie are supported by: 

Malia & Callie

Undiagnosed

Artist: Law Blank 

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Remy is supported by: 

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

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Clara is supported by: 

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

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Ava W. is supported by: 

Ava W.

Fabry Disease

Artist: Jota Leal

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Victor is supported by: 

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

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Rhaiden is supported by: 

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

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Curren is supported by: 

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

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Ava G. is supported by: 

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

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Theodora is supported by: 

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

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Hunter is supported by: 

Hunter

RSS/MVA

Artist: Dan Lake

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Zachary is supported by: 

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

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Robbie is supported by: 

Robbie

Hereditary Spastic Paraplegia

Artist: Isabella Xie

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Ryan is supported by: 

Ryan

ATR-X

Artist: Annette Giaco

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Beckett is supported by: 

Beckett

SYNGAP

Artist: Ian Mohon

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Brenna is supported by: 

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

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Savanna is supported by: 

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

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Luka is supported by: 

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

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Carson is supported by: 

Carson 

Cystic Fibrosis

Artist: Charlie Hall

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Abby is supported by: 

Abby

Craniometaphyseal Dysplasia 

Artist: Vincent Castaldi

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Truman is supported by: 

Truman

Williams Syndrome

Artist: Pam Dooley

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Harper is supported by: 

Harper

Angelman Syndrome

Artist: Sara Breslin

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Lily is supported by: 

Lily

Cystinosis

Artist: Debralee Iacobucci

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Daine is supported by: 

Daine

Osteogenesis Imperfecta

Artist: Jennifer Cahoon

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Eric is supported by: 

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

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Devon is supported by: 

Devon

aHUS

Artist: Tom Hughes

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Teagan is supported by: 

Teagan

Schizencephaly

Artist: Jota Leal

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Khai is supported by: 

Khai

Cavernous Malformation

Artist: Colin Howel

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Brian is supported by: 

Brian 

Ataxia-Telangiectasia

Artist: Colin Howel

Meghan

Meghan is supported by: 

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

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Jett is supported by: 

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

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Caleb is supported by: 

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Chogtaa is supported by: 

Caleb

Macrocephaly Capillary Malformation 

Artist: Serena Andrews

Chogtaa 

Waardenburg Syndrome

Artist: Richard Oliver

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Asia is supported by: 

Asia