Portrait Patrons 2019

Thank you for your support!

~ Deborah Cusack

Madeline is supported by:

~ Kimberly Cusack

~ Marilyn Schmiedel

~ Karen Maloney

~ Mary Elizabeth Parker

Madeline

Unspecified Hypomyelinating Leukodystrophy

Artist: Kimberly Cusack

~ Cure Tay-Sachs

Cora is supported by:

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

~ Michelle Johanssen

Mason & Miles are supported by:

Mason & Miles

Hemophilia

Artist: Jota Leal

~ The Jain Family

Allie is supported by:

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

~ Cara & Glenn O'Neill

Eliza is supported by:

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

Iris is supported by:

~ Christine Waggoner

Iris

GM-1

Artist: Zohra Amarta

Ashlyn is supported by:

~ Family & Friends

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

Noah & Laine are supported by:

~ The VanHoutan Family

~ Family & Friends

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

Tatum is supported by:

~ Family & Friends

Tatum

USP9X

Artist: Colin Howel

Colin is supported by:

~ Danielle Hayes

~ Family & Friends

Colin

Menkes Syndrome

Artist: Law Blank

Glenn is supported by:

~ The Maughansters

~ Family & Friends

Glenn

KBG Syndrome

Artist: Robert Hurst

Olive is supported by:

~ Brooke Strawn

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

Chelsea is supported by:

~ Family & Friends

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

Kalen & Kyan are supported by:

~ Sierra Kulas

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

Emma C. is supported by:

~ Family & Friends

~ Mary Elizabeth Parker

Emma C.

STXBP1

Artist: Lawrence Gardiner

Max B. is supported by:

~ Allison Starr Barnett

Max B.

Krabbe Disease

Artist: Jennifer Polnaszek

Paige is supported by:

~ Belinda Whorton

Paige

MPS VI

Artist: Jota Leal

Amber is supported by:

~ Family & Friends

~ Jose Arellano

Amber

Giant Axonal Neuropathy

Artist: Jota Leal

Scarlett Rose is supported by:

~ Family & Friends

Scarlett Rose

Pompe Disease

Artist: Lucas Kolasa

Tyrece is supported by:

~ Tanya Dyer

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

Allison is supported by:

~ Michelle Ellis

Allison

Propionic Acidemia

Artist: Thanaseth Raksuthakarn

Dylan is supported by:

~ Alan Finglas

Dylan

Multiple Sulfatase Deficiency

Artist: Graham Tierney

Gabby is supported by:

~ Family & Friends

Gabby

Neonatal Progeroid Syndrome

Artist: Jota Leal

Betsi is supported by:

Betsi

Morquio Syndrome

Artist: Kelly Li

Malia & Callie are supported by:

Malia & Callie

Undiagnosed

Artist: Law Blank

Remy is supported by:

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

Clara is supported by:

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

Ava W. is supported by:

Ava W.

Fabry Disease

Artist: Jota Leal

Victor is supported by:

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

Rhaiden is supported by:

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

Curren is supported by:

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

Ava G. is supported by:

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

Theodora is supported by:

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

Hunter is supported by:

Hunter

RSS/MVA

Artist: Dan Lake

Zachary is supported by:

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

Robbie is supported by:

Robbie

Hereditary Spastic Paraplegia

Artist: Isabella Xie

Ryan is supported by:

Ryan

ATR-X

Artist: Annette Giaco

Beckett is supported by:

Beckett

SYNGAP

Artist: Ian Mohon

Brenna is supported by:

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

Savanna is supported by:

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

Luka is supported by:

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

Carson is supported by:

Carson

Cystic Fibrosis

Artist: Charlie Hall

Abby is supported by:

Abby

Craniometaphyseal Dysplasia

Artist: Vincent Castaldi

Truman is supported by:

Truman

Williams Syndrome

Artist: Pam Dooley

Harper is supported by:

Harper

Angelman Syndrome

Artist: Sara Breslin

Lily is supported by:

Lily

Cystinosis

Artist: Debralee Iacobucci

Daine is supported by:

Daine

Osteogenesis Imperfecta

Artist: Jennifer Cahoon

Eric is supported by:

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

Devon is supported by:

Devon

aHUS

Artist: Tom Hughes

Teagan is supported by:

Teagan

Schizencephaly

Artist: Jota Leal

Khai is supported by:

Khai

Cavernous Malformation

Artist: Colin Howel

Brian is supported by:

Brian

Ataxia-Telangiectasia

Artist: Colin Howel

Meghan is supported by:

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

Jett is supported by:

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

Caleb is supported by:

Chogtaa is supported by:

Caleb

Macrocephaly Capillary Malformation

Artist: Serena Andrews

Chogtaa

Waardenburg Syndrome

Artist: Richard Oliver

Asia is supported by:

Asia