Portrait Patrons 2019

Thank you for your support!

~ Deborah Cusack

Madeline is supported by:

~ Kimberly Cusack

~ Marilyn Schmiedel

~ Karen Maloney

~ Mary Elizabeth Parker

Madeline

Unspecified Hypomyelinating Leukodystrophy

Artist: Kimberly Cusack

~ Cure Tay-Sachs

Cora is supported by:

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

~ Michelle Johanssen

Mason & Miles are supported by:

Mason & Miles

Hemophilia

Artist: Jota Leal

~ The Jain Family

Allie is supported by:

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

~ Cara & Glenn O'Neill

Eliza is supported by:

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

Iris is supported by:

~ Christine Waggoner

Iris

GM-1

Artist: Zohra Amarta

Ashlyn is supported by:

~ Family & Friends

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

Noah & Laine are supported by:

~ The VanHoutan Family

~ Family & Friends

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

Tatum is supported by:

~ Family & Friends

Tatum

USP9X

Artist: Colin Howel

Colin is supported by:

~ Danielle Hayes

~ Family & Friends

Colin

Menkes Syndrome

Artist: Law Blank

Glenn is supported by:

~ The Maughansters

~ Family & Friends

Glenn

KBG Syndrome

Artist: Robert Hurst

Olive is supported by:

~ Brooke Strawn

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

Chelsea is supported by:

~ Family & Friends

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

Kalen & Kyan are supported by:

~ Sierra Kulas

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

Emma C. is supported by:

~ Family & Friends

~ Mary Elizabeth Parker

Emma C.

STXBP1

Artist: Lawrence Gardiner

Max B. is supported by:

~ Allison Starr Barnett

Max B.

Krabbe Disease

Artist: Jennifer Polnaszek

Paige is supported by:

~ Belinda Whorton

Paige

MPS VI

Artist: Jota Leal

Amber is supported by:

~ Family & Friends

~ Jose Arellano

Amber

Giant Axonal Neuropathy

Artist: Jota Leal

Scarlett Rose is supported by:

~ Family & Friends

Scarlett Rose

Pompe Disease

Artist: Lucas Kolasa

Tyrece is supported by:

~ Tanya Dyer

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

Allison is supported by:

~ Michelle Ellis

Allison

Propionic Acidemia

Artist: Thanaseth Raksuthakarn

Dylan is supported by:

~ Alan Finglas

Dylan

Multiple Sulfatase Deficiency

Artist: Graham Tierney

Gabby is supported by:

~ Family & Friends

Gabby

Neonatal Progeroid Syndrome

Artist: Jota Leal

Betsi is supported by:

Betsi

Morquio Syndrome

Artist: Kelly Li

Malia & Callie are supported by:

Malia & Callie

Undiagnosed

Artist: Law Blank

Remy is supported by:

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

Clara is supported by:

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

Ava W. is supported by:

Ava W.

Fabry Disease

Artist: Jota Leal

Victor is supported by:

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

Rhaiden is supported by:

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

Curren is supported by:

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

Ava G. is supported by:

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

Theodora is supported by:

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

Hunter is supported by:

Hunter

RSS/MVA

Artist: Dan Lake

Zachary is supported by:

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

Robbie is supported by:

Robbie

Hereditary Spastic Paraplegia

Artist: Isabella Xie

Ryan is supported by:

Ryan

ATR-X

Artist: Annette Giaco

Beckett is supported by:

Beckett

SYNGAP

Artist: Ian Mohon

Brenna is supported by:

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

Savanna is supported by:

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

Luka is supported by:

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

Carson is supported by:

Carson

Cystic Fibrosis

Artist: Charlie Hall

Abby is supported by:

Abby

Craniometaphyseal Dysplasia

Artist: Vincent Castaldi

Truman is supported by:

Truman

Williams Syndrome

Artist: Pam Dooley

Harper is supported by:

Harper

Angelman Syndrome

Artist: Sara Breslin

Lily is supported by:

Lily

Cystinosis

Artist: Debralee Iacobucci

Daine is supported by:

Daine

Osteogenesis Imperfecta

Artist: Jennifer Cahoon

Eric is supported by:

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

Devon is supported by:

Devon

aHUS

Artist: Tom Hughes

Teagan is supported by:

Teagan

Schizencephaly

Artist: Jota Leal

Khai is supported by:

Khai

Cavernous Malformation

Artist: Colin Howel

Brian is supported by:

Brian

Ataxia-Telangiectasia

Artist: Colin Howel

Meghan is supported by:

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

Jett is supported by:

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

Caleb is supported by:

Chogtaa is supported by:

Caleb

Macrocephaly Capillary Malformation

Artist: Serena Andrews

Chogtaa

Waardenburg Syndrome

Artist: Richard Oliver

Asia is supported by:

Asia

2q23.1 Microdeletion

Artist: Zohra Amarta

Hannah is supported by:

Hannah

Incontinentia Pigmenti

Artist: Susan Bennett

Haley is supported by:

Haley

Landau Kleffner Syndrome

Artist: Nancy Gaucher Thomas

Francesca is supported by:

Francesca

ADCY5

Artist: Jota Leal

Guiliana is supported by:

Guiliana

Apert Syndrome

Artist: Vivian McNeeley

Kylie is supported by:

Kylie

Pompe Disease

Artist: Sara Breslin

Megan is supported by:

Megan

18q- Syndrome

Artist: Megan Pugh

Caliee is supported by:

Caliee

Familial Exudative Vitreoretinopathy

Artist: Jacob Gorke

Alanna is supported by:

Alanna

Long QT Syndrome

Artist: Law Blank

Shannon is supported by:

Shannon

Phelan-McDermid Syndrome

Artist: Marco Jaxa

Miriam is supported by:

Miriam

Moebius Syndrome

Artist: Lori Jeremiah

Noah is supported by:

Noah

Gaucher Disease

Artist: Ian Mohon

Austin & Max are supported by:

Austin & Max

Duchenne Muscular Dystrophy

Artist: Dan Lake

Bertrand is supported by:

Bertrand

NGLY1 Deficiency

Artist: Lucas Kolasa

Aidan is supported by:

Aidan

Ectodermal Dysplasia

Artist: Nan Kruzik

Lydia is supported by:

Lydia

DEND Syndrome

Artist: Kathy Noble

Vanessa is supported by:

Vanessa

Usher Syndrome

Artist: Vivian McNeeley

Bly & Ty are supported by:

Bly & Ty

Barth Syndrome

Artist: Piotr Wirkijowski

Avery is supported by:

Avery

Microvillus Inclusion Disease

Artist: Dimitry Gritsenko

Luke is supported by:

Luke

Undiagnosed

Artist: Ed Capeau

Jaylyn is supported by:

Jaylyn

Bilateral Perisylvian Polymicrogyria

Artist: Pawel Ber

Sophie is supported by:

Sophie

Wiedemann-Steiner Syndrome

Artist: Clark Ocampo

Arshaan & Jahan are supported by:

Arshaan & Jahan

Jansen Type Metaphyseal Chondrodysplasia

Artist: Jennifer Cahoon

Mason is supported by:

Mason

WDR37 Syndrome

Artist: Kevin Wasden

Siena is supported by:

Siena

Prader-Willi Syndrome

Artist: Marie Laudini

Haleigh & Avee are supported by:

Haleigh & Avee

Ehlers-Danlos Syndrome

Artist: Robert Francis Whelan

Hanna is supported by:

Hanna

Biliary Atresia Liver Disease

Artist: Ian Mohon

Rikki is supported by:

Rikki

Kabuki Syndrome

Artist: Thea McElvy

Jayson is supported by:

Jayson

MN1 Gene Mutation

Artist: Lucas Kolasa

Joanna is supported by:

Joanna

Arthrogryposis Multiplex Congenita

Artist: Tariq Rahman

Emma T. is supported by:

Emma T.

Lissencephaly

Artist: Robert Hurst

Lucas is supported by:

Lucas V.

Pulmonary Hypertension

Artist: Nan Kruzik

Sophia is supported by:

Sophia

Rett Syndrome

Artist: Vivian McNeeley

Maximus is supported by:

Maximus

SCN8A Epilepsy-genetic mutation

Artist: Lori Jeremiah

Michael is supported by:

Michael

9P24.3 Deletion

Artist: Michelle Fairchild

Max S. is supported by:

Max S.

Noonan Syndrome

Artist: Sara Breslin

Naylah is supported by:

Naylah

Trisomy 5q

Artist: Anat Ronen

Joey is supported by:

Joey

F.I.R.E.S.

Artist: Shirley deLang

Conner & Malia are supported by:

Conner & Malia

Sandhoff Disease

Artist: Thanaseth Raksuthakarn

Everly is supported by:

Everly

Megacystic Microcolon Intestinal Hypoperistalsis

Artist: Michal Madison

Dustyn is supported by:

Dustyn

Glutaric Aciduria

Artist: Tatiana Roulin

Purnell is supported by:

Purnell

Nieman-Pick Disease

Artist: Lucas Kolasa

Sam is supported by:

Sam

Vanishing White Matter

Artist: Lucas Kolasa

Talynn is supported by:

Talynn

Bohring-Opitz Syndrome

Artist: Marie Jones

Aliyah is supported by:

Aliyah

VACTERL Association

Artist: Lauren Rudolph

Milaniya is supported by:

Milaniya

Alagille Syndrome

Artist: Robert Hurst

Brooklyn is supported by:

Brooklyn

22q11 Deletion

Artist: Thanaseth Raksuthakarn