Portrait Patrons 2019

Thank you for your support!

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~ Deborah Cusack

Madeline is supported by: 

~ Kimberly Cusack

~ Marilyn Schmiedel

~ Karen Maloney

~ Mary Elizabeth Parker

Madeline

Unspecified Hypomyelinating Leukodystrophy

Artist: Kimberly Cusack

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~ Michelle Johanssen

Mason & Miles are supported by: 

Mason & Miles

Hemophilia

Artist: Jota Leal

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~ Cara & Glenn O'Neill

Eliza is supported by: 

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

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Ashlyn is supported by: 

~ Family & Friends

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

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Tatum is supported by: 

~ Family & Friends

Tatum

USP9X

Artist: Colin Howel

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Glenn is supported by: 

~ The Maughansters

~ Family & Friends

Glenn

KBG Syndrome

Artist: Robert Hurst

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Chelsea is supported by: 

~ Family & Friends

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

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Emma C. is supported by: 

~ Family & Friends

~ Mary Elizabeth Parker

Emma C.

STXBP1

Artist: Lawrence Gardiner

Paige

Paige is supported by: 

~ Belinda Whorton

Paige

MPS VI

Artist: Jota Leal

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Scarlett Rose is supported by: 

~ Family & Friends

Scarlett Rose

 Pompe Disease

Artist: Lucas Kolasa

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Allison is supported by: 

~ Michelle Ellis

Allison

Propionic Acidemia

Artist: Thanaseth Raksuthakarn

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Gabby is supported by: 

~ Family & Friends

Gabby

Neonatal Progeroid Syndrome

Artist: Jota Leal

Malia & Callie

Malia & Callie are supported by: 

Malia & Callie

Undiagnosed

Artist: Law Blank 

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Clara is supported by: 

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

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Victor is supported by: 

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

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Curren is supported by: 

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

Theodora.jpg

Theodora is supported by: 

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

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Zachary is supported by: 

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

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Ryan is supported by: 

Ryan

ATR-X

Artist: Annette Giaco

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Brenna is supported by: 

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

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Luka is supported by: 

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

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Abby is supported by: 

Abby

Craniometaphyseal Dysplasia 

Artist: Vincent Castaldi

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Harper is supported by: 

Harper

Angelman Syndrome

Artist: Sara Breslin

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Daine is supported by: 

Daine

Osteogenesis Imperfecta

Artist: Jennifer Cahoon

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Devon is supported by: 

Devon

aHUS

Artist: Tom Hughes

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Khai is supported by: 

Khai

Cavernous Malformation

Artist: Colin Howel

Meghan

Meghan is supported by: 

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

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Caleb is supported by: 

Caleb

Macrocephaly Capillary Malformation 

Artist: Serena Andrews

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Asia is supported by: 

Asia

2q23.1 Microdeletion

Artist: Zohra Amarta

Hannah.jpg

Hannah is supported by: 

Hannah

Incontinentia Pigmenti

Artist: Susan Bennett

Guiliana.jpg

Guiliana is supported by: 

Guiliana

Apert Syndrome

Artist: Vivian McNeeley

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Megan is supported by: 

Megan

18q- Syndrome

Artist: Megan Pugh

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Alanna is supported by: 

Alanna

Long QT Syndrome

Artist: Law Blank 

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Miriam is supported by: 

Miriam

Moebius Syndrome

Artist: Lori Jeremiah

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Austin & Max are supported by: 

Austin & Max

Duchenne Muscular Dystrophy

Artist: Dan Lake

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Aidan is supported by: 

Aidan

Ectodermal Dysplasia

Artist: Nan Kruzik

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Vanessa is supported by: 

Vanessa

Usher Syndrome

Artist: Vivian McNeeley

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Avery is supported by: 

Avery

Microvillus Inclusion Disease

Artist: Dimitry Gritsenko

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Jaylyn is supported by: 

Jaylyn

Bilateral Perisylvian Polymicrogyria

Artist: Pawel Ber

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Arshaan & Jahan are supported by: 

Arshaan & Jahan

Jansen Type Metaphyseal Chondrodysplasia

Artist: Jennifer Cahoon

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Siena is supported by: 

Siena

Prader-Willi Syndrome

Artist: Marie Laudini

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Hanna is supported by: 

Hanna

Biliary Atresia Liver Disease

Artist: Ian Mohon

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Jayson is supported by: 

Jayson

MN1 Gene Mutation

Artist: Lucas Kolasa

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Emma T. is supported by: 

Emma T.

Lissencephaly

Artist: Robert Hurst

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Sophia is supported by: 

Sophia

Rett Syndrome

Artist: Vivian McNeeley

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Michael is supported by: 

Michael

9P24.3 Deletion

Artist: Michelle Fairchild

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Max S. is supported by: 

Max S.

Noonan Syndrome

Artist: Sara Breslin

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Conner & Malia are  supported by: 

Conner & Malia

Sandhoff Disease

Artist: Thanaseth Raksuthakarn

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Everly is supported by: 

Everly

Megacystic Microcolon Intestinal Hypoperistalsis

Artist: Michal Madison

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Sam is supported by: 

Sam

Vanishing White Matter

Artist: Lucas Kolasa

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Aliyah is supported by: 

Aliyah

VACTERL Association

Artist: Lauren Rudolph

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Brooklyn is supported by: 

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~ Cure Tay-Sachs

Cora is supported by: 

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

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~ The Jain Family

Allie is supported by: 

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

Iris

Iris is supported by: 

~ Christine Waggoner

Iris

GM-1

Artist: Zohra Amarta

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Noah & Laine are supported by: 

~ The VanHoutan Family

~ Family & Friends

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

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Colin is supported by: 

~ Danielle Hayes

~ Family & Friends

Colin

Menkes Syndrome

Artist: Law Blank

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Olive is supported by: 

~ Brooke Strawn

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

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Kalen & Kyan are supported by: 

~ Sierra Kulas

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

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Max B. is supported by: 

~ Allison Starr Barnett

Max B.

Krabbe Disease

Artist: Jennifer Polnaszek

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Amber is supported by: 

~ Family & Friends

~ Jose Arellano

Amber

Giant Axonal Neuropathy

Artist: Jota Leal

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Tyrece is supported by: 

~ Tanya Dyer

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

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Dylan is supported by: 

~ Alan Finglas

Dylan

Multiple Sulfatase Deficiency

Artist: Graham Tierney

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Betsi is supported by: 

Betsi

Morquio Syndrome

Artist: Kelly Li

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Remy is supported by: 

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

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Ava W. is supported by: 

Ava W.

Fabry Disease

Artist: Jota Leal

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Rhaiden is supported by: 

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

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Ava G. is supported by: 

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

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Hunter is supported by: 

Hunter

RSS/MVA

Artist: Dan Lake

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Robbie is supported by: 

Robbie

Hereditary Spastic Paraplegia

Artist: Isabella Xie

Beckett.jpg

Beckett is supported by: 

Beckett

SYNGAP

Artist: Ian Mohon

Savanna.jpg

Savanna is supported by: 

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

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Carson is supported by: 

Carson 

Cystic Fibrosis

Artist: Charlie Hall

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Truman is supported by: 

Truman

Williams Syndrome

Artist: Pam Dooley

Lily.jpg

Lily is supported by: 

Lily

Cystinosis

Artist: Debralee Iacobucci

Eric.jpg

Eric is supported by: 

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

Teagan.jpg

Teagan is supported by: 

Teagan

Schizencephaly

Artist: Jota Leal

Brian.jpg

Brian is supported by: 

Brian 

Ataxia-Telangiectasia

Artist: Colin Howel

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Jett is supported by: 

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

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Chogtaa is supported by: 

Chogtaa 

Waardenburg Syndrome

Artist: Richard Oliver

Haley.jpg

Haley is supported by: 

Haley

Landau Kleffner Syndrome

Artist: Nancy Gaucher Thomas

Francesca.jpg

Francesca is supported by: 

Francesca

ADCY5

Artist: Jota Leal

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Kylie is supported by: 

Kylie

Pompe Disease

Artist: Sara Breslin

Caliee.jpg

Caliee is supported by: 

Caliee 

Familial Exudative Vitreoretinopathy

Artist: Jacob Gorke

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Shannon is supported by: 

Shannon

Phelan-McDermid Syndrome

Artist: Marco Jaxa

Noah.jpg

Noah is supported by: 

Noah

Gaucher Disease

Artist: Ian Mohon

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Bertrand is supported by: 

Bertrand

NGLY1 Deficiency

Artist: Lucas Kolasa

Lydia.jpg

Lydia is supported by: 

Lydia

DEND Syndrome

Artist: Kathy Noble

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Bly & Ty are supported by: 

Bly & Ty

Barth Syndrome

Artist: Piotr Wirkijowski

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Luke is supported by: 

Luke

Undiagnosed

Artist: Ed Capeau

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Sophie is supported by: 

Sophie

Wiedemann-Steiner Syndrome

Artist: Clark Ocampo

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Mason is supported by: 

Mason

WDR37 Syndrome

Artist: Kevin Wasden

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Haleigh & Avee are supported by: 

Haleigh & Avee

Ehlers-Danlos Syndrome

Artist: Robert Francis Whelan

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Rikki is supported by: 

Rikki

Kabuki Syndrome

Artist: Thea McElvy

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Joanna is supported by: 

Joanna

Arthrogryposis Multiplex Congenita

Artist: Tariq Rahman

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Lucas is supported by: 

Lucas V.

Pulmonary Hypertension

Artist: Nan Kruzik

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Maximus is supported by: 

Maximus

SCN8A Epilepsy-genetic mutation

Artist: Lori Jeremiah

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Naylah is supported by: 

Naylah

Trisomy 5q

Artist: Anat Ronen

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Joey is supported by: 

Joey

F.I.R.E.S.

Artist: Shirley deLang

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Dustyn is supported by: 

Dustyn

Glutaric Aciduria

Artist: Tatiana Roulin

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Purnell is supported by: 

Purnell

Nieman-Pick Disease

Artist: Lucas Kolasa

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Talynn is supported by: 

Talynn

Bohring-Opitz Syndrome

Artist: Marie Jones

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Milaniya is supported by: 

Milaniya

Alagille Syndrome

Artist: Robert Hurst

Brooklyn

22q11 Deletion

Artist: Thanaseth Raksuthakarn