Portrait Patrons 2019

Thank you for your support!

~ Deborah Cusack

Madeline is supported by: 

~ Kimberly Cusack

~ Marilyn Schmiedel

~ Karen Maloney

~ Mary Elizabeth Parker

Madeline

Unspecified Hypomyelinating Leukodystrophy

Artist: Kimberly Cusack

~ Michelle Johanssen

Mason & Miles are supported by: 

Mason & Miles

Hemophilia

Artist: Jota Leal

~ Cara & Glenn O'Neill

Eliza is supported by: 

Eliza

Sanfilippo Syndrome

Artist: Ian Mohon

Ashlyn is supported by: 

~ Family & Friends

Ashlyn

Sturge-Weber Syndrome

Artist: Wolfgang Widmoser

Tatum is supported by: 

~ Family & Friends

Tatum

USP9X

Artist: Colin Howel

Glenn is supported by: 

~ The Maughansters

~ Family & Friends

Glenn

KBG Syndrome

Artist: Robert Hurst

Chelsea is supported by: 

~ Family & Friends

Chelsea

Shprintzen-Goldberg Syndrome

Artist: Mandy Peltier

Emma C. is supported by: 

~ Family & Friends

~ Mary Elizabeth Parker

Emma C.

STXBP1

Artist: Lawrence Gardiner

Paige is supported by: 

~ Belinda Whorton

Paige

MPS VI

Artist: Jota Leal

Scarlett Rose is supported by: 

~ Family & Friends

Scarlett Rose

 Pompe Disease

Artist: Lucas Kolasa

Allison is supported by: 

~ Michelle Ellis

Allison

Propionic Acidemia

Artist: Thanaseth Raksuthakarn

Aliyah is supported by: 

Aliyah

VACTERL Association

Artist: Lauren Rudolph

Malia & Callie are supported by: 

Malia & Callie

Undiagnosed

Artist: Law Blank 

Clara is supported by: 

Clara

Epidermolyosis Bullosa

Artist: Brandi Twilley

Victor is supported by: 

Victor

CLOVES Syndrome

Artist: Phyllis Pesaturo

Curren is supported by: 

Curren

HIVEP2 Syndrome

Artist: Rosiland Ridley

Theodora is supported by: 

Theodora

Timothy Syndrome

Artist: Jennifer Cahoon

Zachary is supported by: 

Zachary

Aarskog Syndrome

Artist: Kelliann Jarasitis

Ryan is supported by: 

Ryan

ATR-X

Artist: Annette Giaco

Brenna is supported by: 

Brenna

Harlequin Ichthyosis

Artist: Beth Johnston

Luka is supported by: 

Luka

Primary Immunodeficiency Disease

Artist: Vivian McNeeley

Abby is supported by: 

Abby

Craniometaphyseal Dysplasia 

Artist: Vincent Castaldi

Harper is supported by: 

Harper

Angelman Syndrome

Artist: Sara Breslin

Daine is supported by: 

Daine

Osteogenesis Imperfecta

Artist: Jennifer Cahoon

Devon is supported by: 

Devon

aHUS

Artist: Tom Hughes

Khai is supported by: 

Khai

Cavernous Malformation

Artist: Colin Howel

Meghan is supported by: 

Meghan

Hutchinson-Gilford Progeria

Artist: Jota Leal

Caleb is supported by: 

Caleb

Macrocephaly Capillary Malformation 

Artist: Serena Andrews

Asia is supported by: 

Asia

2q23.1 Microdeletion

Artist: Zohra Amarta

Hannah is supported by: 

Hannah

Incontinentia Pigmenti

Artist: Susan Bennett

Guiliana is supported by: 

Guiliana

Apert Syndrome

Artist: Vivian McNeeley

Megan is supported by: 

Megan

18q- Syndrome

Artist: Megan Pugh

Alanna is supported by: 

Alanna

Long QT Syndrome

Artist: Law Blank 

Miriam is supported by: 

Miriam

Moebius Syndrome

Artist: Lori Jeremiah

Austin & Max are supported by: 

Austin & Max

Duchenne Muscular Dystrophy

Artist: Dan Lake

Aidan is supported by: 

Aidan

Ectodermal Dysplasia

Artist: Nan Kruzik

Vanessa is supported by: 

Vanessa

Usher Syndrome

Artist: Vivian McNeeley

Avery is supported by: 

Avery

Microvillus Inclusion Disease

Artist: Dimitry Gritsenko

Jaylyn is supported by: 

Jaylyn

Bilateral Perisylvian Polymicrogyria

Artist: Pawel Ber

Arshaan & Jahan are supported by: 

Arshaan & Jahan

Jansen Type Metaphyseal Chondrodysplasia

Artist: Jennifer Cahoon

Siena is supported by: 

Siena

Prader-Willi Syndrome

Artist: Marie Laudini

Hanna is supported by: 

Hanna

Biliary Atresia Liver Disease

Artist: Ian Mohon

Jayson is supported by: 

Jayson

MN1 Gene Mutation

Artist: Lucas Kolasa

Emma T. is supported by: 

Emma T.

Lissencephaly

Artist: Robert Hurst

Sophia is supported by: 

Sophia

Rett Syndrome

Artist: Vivian McNeeley

Michael is supported by: 

Michael

9P24.3 Deletion

Artist: Michelle Fairchild

Max S. is supported by: 

Max S.

Noonan Syndrome

Artist: Sara Breslin

Conner & Malia are  supported by: 

Conner & Malia

Sandhoff Disease

Artist: Thanaseth Raksuthakarn

Everly is supported by: 

Everly

Megacystic Microcolon Intestinal Hypoperistalsis

Artist: Michal Madison

Sam is supported by: 

Sam

Vanishing White Matter

Artist: Lucas Kolasa

~ Cure Tay-Sachs

Cora is supported by: 

Cora

Tay-Sachs Disease

Artist: Lori Jeremiah

~ The Jain Family

Allie is supported by: 

Allie

Parental Uniparental Isdisomy Chromosome 4

Artist: Anat Ronen

Iris is supported by: 

~ Christine Waggoner

Iris

GM-1

Artist: Zohra Amarta

Noah & Laine are supported by: 

~ The VanHoutan Family

~ Family & Friends

Noah & Laine

CLN2 Batten Disease

Artist: Dan Lake

Colin is supported by: 

~ Danielle Hayes

~ Family & Friends

Colin

Menkes Syndrome

Artist: Law Blank

Olive is supported by: 

~ Brooke Strawn

Olive

Alfi's Syndrome

Artist: Robert Francis Whelan

Kalen & Kyan are supported by: 

~ Sierra Kulas

Kalen & Kyan

Spinal Muscular Atrophy

Artist: Ian Gaudreau

Max B. is supported by: 

~ Allison Starr Barnett

Max B.

Krabbe Disease

Artist: Jennifer Polnaszek

Amber is supported by: 

~ Family & Friends

~ Jose Arellano

Amber

Giant Axonal Neuropathy

Artist: Jota Leal

Tyrece is supported by: 

~ Tanya Dyer

Tyrece

Arterial Tortuosity Syndrome

Artist: Tammy Murray

Dylan is supported by: 

~ Alan Finglas

Dylan

Multiple Sulfatase Deficiency

Artist: Graham Tierney

Betsi is supported by: 

Betsi

Morquio Syndrome

Artist: Kelly Li

Remy is supported by: 

Remy

Septo Optic Dysplasia

Artist: Robert Francis Whelan

Ava W. is supported by: 

Ava W.

Fabry Disease

Artist: Jota Leal

Rhaiden is supported by: 

Rhaiden

Hemophagocytic Lymphohistiocytosis

Artist: Robert Francis Whelan

Ava G. is supported by: 

Ava G.

Achondroplasia Dwarfism

Artist: Robin Beckwith

Hunter is supported by: 

Hunter

RSS/MVA

Artist: Dan Lake

Robbie is supported by: 

Robbie

Hereditary Spastic Paraplegia

Artist: Isabella Xie

Beckett is supported by: 

Beckett

SYNGAP

Artist: Ian Mohon

Savanna is supported by: 

Savanna

7q36.1q36.3 Deletion

Artist: Beth Johnston

Carson is supported by: 

Carson 

Cystic Fibrosis

Artist: Charlie Hall

Truman is supported by: 

Truman

Williams Syndrome

Artist: Pam Dooley

Lily is supported by: 

Lily

Cystinosis

Artist: Debralee Iacobucci

Eric is supported by: 

Eric

Nonketotic Hyperglycinemia

Artist: Jennifer Cahoon

Teagan is supported by: 

Teagan

Schizencephaly

Artist: Jota Leal

Brian is supported by: 

Brian 

Ataxia-Telangiectasia

Artist: Colin Howel

Jett is supported by: 

Jett

Duchenne Muscular Dystrophy

Artist: Kate Huntington

Chogtaa is supported by: 

Chogtaa 

Waardenburg Syndrome

Artist: Richard Oliver

Haley is supported by: 

Haley

Landau Kleffner Syndrome

Artist: Nancy Gaucher Thomas

Francesca is supported by: 

Francesca

ADCY5

Artist: Jota Leal

Kylie is supported by: 

Kylie

Pompe Disease

Artist: Sara Breslin

Caliee is supported by: 

Caliee 

Familial Exudative Vitreoretinopathy

Artist: Jacob Gorke

Shannon is supported by: 

Shannon

Phelan-McDermid Syndrome

Artist: Marco Jaxa

Noah is supported by: 

Noah

Gaucher Disease

Artist: Ian Mohon

Bertrand is supported by: 

Bertrand

NGLY1 Deficiency

Artist: Lucas Kolasa

Lydia is supported by: 

Lydia

DEND Syndrome

Artist: Kathy Noble

Bly & Ty are supported by: 

Bly & Ty

Barth Syndrome

Artist: Piotr Wirkijowski

Luke is supported by: 

Luke

Undiagnosed

Artist: Ed Capeau

Sophie is supported by: 

Sophie

Wiedemann-Steiner Syndrome

Artist: Clark Ocampo

Mason is supported by: 

Mason

WDR37 Syndrome

Artist: Kevin Wasden

Haleigh & Avee are supported by: 

Haleigh & Avee

Ehlers-Danlos Syndrome

Artist: Robert Francis Whelan

Rikki is supported by: 

Rikki

Kabuki Syndrome

Artist: Thea McElvy

Joanna is supported by: 

Joanna

Arthrogryposis Multiplex Congenita

Artist: Tariq Rahman

Lucas is supported by: 

Lucas V.

Pulmonary Hypertension

Artist: Nan Kruzik

Maximus is supported by: 

Maximus

SCN8A Epilepsy-genetic mutation

Artist: Lori Jeremiah

Naylah is supported by: 

Naylah

Trisomy 5q

Artist: Anat Ronen

Joey is supported by: 

Joey

F.I.R.E.S.

Artist: Shirley deLang

Dustyn is supported by: 

Dustyn

Glutaric Aciduria

Artist: Tatiana Roulin

Purnell is supported by: 

Purnell

Nieman-Pick Disease

Artist: Lucas Kolasa

Talynn is supported by: 

Talynn

Bohring-Opitz Syndrome

Artist: Marie Jones

Beyond the Diagnosis

P.O. Box 16534 Rumford, RI 02916

Tel: 401-434-0052

info@beyondthediagnosis.org

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©2019 Beyond the Diagnosis

This program and exhibit are proprietary to Beyond the Diagnosis.  Any reproduction of any portion of this program and exhibit are expressly prohibited without permission of Beyond the Diagnosis.