Portrait Patrons 2019
Thank you for your support!

~ Deborah Cusack
Madeline is supported by:
~ Kimberly Cusack
~ Marilyn Schmiedel
~ Karen Maloney
~ Mary Elizabeth Parker
Madeline
Unspecified Hypomyelinating Leukodystrophy
Artist: Kimberly Cusack

~ Cure Tay-Sachs
Cora is supported by:
Cora
Tay-Sachs Disease
Artist: Lori Jeremiah

~ Michelle Johanssen
Mason & Miles are supported by:
Mason & Miles
Hemophilia
Artist: Jota Leal

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~ The Jain Family
Allie is supported by:
Allie
Parental Uniparental Isdisomy Chromosome 4
Artist: Anat Ronen

~ Cara & Glenn O'Neill
Eliza is supported by:
Eliza
Sanfilippo Syndrome
Artist: Ian Mohon

Iris is supported by:
~ Christine Waggoner
Iris
GM-1
Artist: Zohra Amarta

Ashlyn is supported by:
~ Family & Friends
Ashlyn
Sturge-Weber Syndrome
Artist: Wolfgang Widmoser

Noah & Laine are supported by:
~ The VanHoutan Family
~ Family & Friends
Noah & Laine
CLN2 Batten Disease
Artist: Dan Lake

Tatum is supported by:
~ Family & Friends
Tatum
USP9X
Artist: Colin Howel

Colin is supported by:
~ Danielle Hayes
~ Family & Friends
Colin
Menkes Syndrome
Artist: Law Blank

Glenn is supported by:
~ The Maughansters
~ Family & Friends
Glenn
KBG Syndrome
Artist: Robert Hurst

Olive is supported by:
~ Brooke Strawn
Olive
Alfi's Syndrome
Artist: Robert Francis Whelan

Chelsea is supported by:
~ Family & Friends
Chelsea
Shprintzen-Goldberg Syndrome
Artist: Mandy Peltier

Kalen & Kyan are supported by:
~ Sierra Kulas
Kalen & Kyan
Spinal Muscular Atrophy
Artist: Ian Gaudreau

Emma C. is supported by:
~ Family & Friends
~ Mary Elizabeth Parker
Emma C.
STXBP1
Artist: Lawrence Gardiner

Max B. is supported by:
~ Allison Starr Barnett
Max B.
Krabbe Disease
Artist: Jennifer Polnaszek

Paige is supported by:
~ Belinda Whorton
Paige
MPS VI
Artist: Jota Leal

Amber is supported by:
~ Family & Friends
~ Jose Arellano
Amber
Giant Axonal Neuropathy
Artist: Jota Leal

Scarlett Rose is supported by:
~ Family & Friends
Scarlett Rose
Pompe Disease
Artist: Lucas Kolasa

Tyrece is supported by:
~ Tanya Dyer
Tyrece
Arterial Tortuosity Syndrome
Artist: Tammy Murray

Allison is supported by:
~ Michelle Ellis
Allison
Propionic Acidemia
Artist: Thanaseth Raksuthakarn

Dylan is supported by:
~ Alan Finglas
Dylan
Multiple Sulfatase Deficiency
Artist: Graham Tierney

Gabby is supported by:
~ Family & Friends
Gabby
Neonatal Progeroid Syndrome
Artist: Jota Leal

Betsi is supported by:
Betsi
Morquio Syndrome
Artist: Kelly Li

Malia & Callie are supported by:
Malia & Callie
Undiagnosed
Artist: Law Blank

Remy is supported by:
Remy
Septo Optic Dysplasia
Artist: Robert Francis Whelan

Clara is supported by:
Clara
Epidermolyosis Bullosa
Artist: Brandi Twilley
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Ava W. is supported by:
Ava W.
Fabry Disease
Artist: Jota Leal

Victor is supported by:
Victor
CLOVES Syndrome
Artist: Phyllis Pesaturo

Rhaiden is supported by:
Rhaiden
Hemophagocytic Lymphohistiocytosis
Artist: Robert Francis Whelan

Curren is supported by:
Curren
HIVEP2 Syndrome
Artist: Rosiland Ridley

Ava G. is supported by:
Ava G.
Achondroplasia Dwarfism
Artist: Robin Beckwith

Theodora is supported by:
Theodora
Timothy Syndrome
Artist: Jennifer Cahoon

Hunter is supported by:
Hunter
RSS/MVA
Artist: Dan Lake

Zachary is supported by:
Zachary
Aarskog Syndrome
Artist: Kelliann Jarasitis

Robbie is supported by:
Robbie
Hereditary Spastic Paraplegia
Artist: Isabella Xie

Ryan is supported by:
Ryan
ATR-X
Artist: Annette Giaco

Beckett is supported by:
Beckett
SYNGAP
Artist: Ian Mohon

Brenna is supported by:
Brenna
Harlequin Ichthyosis
Artist: Beth Johnston

Savanna is supported by:
Savanna
7q36.1q36.3 Deletion
Artist: Beth Johnston

Luka is supported by:
Luka
Primary Immunodeficiency Disease
Artist: Vivian McNeeley

Carson is supported by:
Carson
Cystic Fibrosis
Artist: Charlie Hall

Abby is supported by:
Abby
Craniometaphyseal Dysplasia
Artist: Vincent Castaldi

Truman is supported by:
Truman
Williams Syndrome
Artist: Pam Dooley

Harper is supported by:
Harper
Angelman Syndrome
Artist: Sara Breslin

Lily is supported by:
Lily
Cystinosis
Artist: Debralee Iacobucci

Daine is supported by:
Daine
Osteogenesis Imperfecta
Artist: Jennifer Cahoon

Eric is supported by:
Eric
Nonketotic Hyperglycinemia
Artist: Jennifer Cahoon

Devon is supported by:
Devon
aHUS
Artist: Tom Hughes

Teagan is supported by:
Teagan
Schizencephaly
Artist: Jota Leal

Khai is supported by:
Khai
Cavernous Malformation
Artist: Colin Howel

Brian is supported by:
Brian
Ataxia-Telangiectasia
Artist: Colin Howel

Meghan is supported by:
Meghan
Hutchinson-Gilford Progeria
Artist: Jota Leal

Jett is supported by:
Jett
Duchenne Muscular Dystrophy
Artist: Kate Huntington

Caleb is supported by:

Chogtaa is supported by:
Caleb
Macrocephaly Capillary Malformation
Artist: Serena Andrews
Chogtaa
Waardenburg Syndrome
Artist: Richard Oliver

Asia is supported by:
Asia