Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with rare and life-altering diseases.
Tay-Sachs Disease Artist: Lori Jeremiah
STXBP1 Artist: Lawrence Gardinier
September 29th Aarskog Syndrome Artist: Kelliann Jarasitis
Tay-Sachs Disease Artist: Lori Jeremiah
The following rare and life-altering diseases have awareness days in September: Tay-Sachs Disease, STXBP1, Achalasia, BLOC1S1 Hypomyelianating Leukodystrophy, Sickle Cell Disease, Krabbe Disease, Vanishing White Matter, Duchenne Muscular Dystrophy, Lissencephaly, 9P 24.3 Deletion, Alfi's Syndrome, Wiedemann-Steiner Syndrome, Microvillus Inclusion Disease, Usher Syndrome, aHUS, Ataxia-Telangiectasia & Aarskog Syndrome
