News 2020-2015
2020
"Patients Share Hope in the Pandemic"
Patrick Mairs
April 8, 2020
"Living with a rare disease"
Justin McCarthy
March 1, 2020
"Portraits Outside of East Providence home send message of 'joy and light'"
Madeline List
May 5, 2020
"Social Media as a Patient Advocacy Tool During COVID-19 Pandemic"
Victoria Radke
May 7, 2020
2019
"Faces of Rare Diseases"
Patrick Mairs
January 17, 2019
"NIH Hosts Rare Disease Day"
Michael D. O'Neill
March 5, 2019
"FDA is Working to Bridge Gaps"
Janet Maynard
May 29, 2019
"Rare Disease Day: Exhibit and Research Conference"
February 27, 2019
"Inspiring Art"
March 19, 2019
"Local student to be featured in nationwide exhibit"
Kori Johnson & Sydney Basden
September 13, 2019
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"Einstein College of Medicine hosts rare disease art exhibit"
March 1, 2019
"Power Of Rare Disease Patient"
Brenda Sandburg
May 15, 2019
"Paintings seek to inspire research on rare diseases"
Barbara Morse Silva
October 7th, 2019
"More than meets the eye: Exhibit of children’s portraits meant to raise awareness of rare diseases"
Madeline List
November 29th, 2019
2018
"Beyond the Diagnosis"
February 20, 2018
"Art captures life of kids with rare diseases"
Ian Walker
April 3, 2018
"Art exhibit at Texas State draws attention to rare diseases"
Steffi Lee
October 4, 2018
"Q&A: ‘Beyond the Diagnoses’ exhibit will feature local student"
Kate York
February 26, 2018
"The Human Genome Experience – Discover, eNgage, leArn"
Sharon Rosen
June 7, 2018
"Beyond the Diagnosis"
Lauren Petrowski
November 9, 2018
"Groundbreaking art exhibit puts spotlight on rare diseases"
Shirley MIn
March 9, 2018
"Artists adopt orphan diseases"
Catherine Lucas
October 1, 2018
2017
"Rare Art"
Ellen Welty
April 5, 2017
"Rare Disease Day 2017"
December 20, 2017
2016
"Leading the Way: Beyond the Diagnosis "
Daryl Velez
October 11, 2016
"Putting a face on rare disease"
Tom Ulrich
April 8, 2016
"Putting a face on rare, incurable diseases "
Jim Axelrod
August 28, 2016
2015
"Exhibit takes viewers Beyond the Diagnosis"
David Orenstein
February 5, 2015
"Kids with rare diseases painted for awareness"
Dana Griffin
February 6, 2015
"The Changing World of Long-Term Care in RI"
March 2015
"Art show portrays children with rare diseases as 'beautiful human beings"
Susan Donaldson
August 3, 2015
"Art show portrays children with rare diseases as 'beautiful human beings"
Dana Guth
November 4, 2015
"No longer invisible: The faces of rare diseaes"
Melissa Bailey
November 30, 2015
"Med School exhibit takes people-first approach"
Tom Ulrich
February 20, 2015
"Beyond the Diagnosis"
Savannah Young
October 29, 2015